After months of misdiagnosis and unanswered questions, my Wilson's Disease diagnosis changed my world overnight.
Track My Copper began with the support tool I desperately needed but could not find.
Read My Story
In February 2024, after months of misdiagnosis and unanswered questions, I was finally diagnosed with Wilson's Disease.
The news hit me hard.
For so long, I knew something wasn't right. Finally having an answer brought a mixture of relief, fear, and uncertainty.
I was overwhelmed. My world had changed overnight, and I had no idea what life with Wilson's Disease would look like.
Like many newly diagnosed patients, I turned to the internet. I looked for something that could help me track symptoms, remember medication, monitor my health, and make sense of what I was experiencing.
I couldn't find any tool.
I remember asking my neurologist if there was an app specifically designed for people living with Wilson's Disease.
His answer was simple
“No, unfortunately.”
That moment stayed with me.
As I learned to live with the condition, I realized that many of the difficulties I faced were shared by other patients.
Remembering symptoms during medical appointments
Worrying about missed medication
Managing changes to speech
Feeling isolated, frustrated, and overwhelmed
If the app I needed didn't exist, why couldn't I build it myself?
Pen and paper
I grabbed a pen and paper and started writing. I wrote down:
Track My Copper was created to turn the challenges of living with Wilson's Disease into practical tools, clearer routines, and a stronger sense of community.