Learn at Your Own Pace

Track My Copper Blog

Personal stories and reflections on living with Wilson's disease, for patients and the families who care for them.

These articles share lived experiences and do not replace advice from your healthcare professional.

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Featured Story

What I Wish I Knew When I Was Diagnosed With Wilson’s Disease

Ten personal reflections on a Wilson's disease diagnosis, from adjusting to medication and asking questions to finding support and looking towards the future.

Read the Full Story

Helpful reads for everyday life

Explore stories about diagnosis, finding your voice and rebuilding life with Wilson's disease.

After Diagnosis

4 min read

What I Wish I Knew When I Was Diagnosed With Wilson’s Disease

Ten personal reflections on a Wilson's disease diagnosis, from adjusting to medication and asking questions to finding support and looking towards the future.

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Self-Advocacy

2 min read

Don’t Let Yourself Be Dismissed: Why Speaking Up About Your Health Matters

A personal Wilson's disease diagnosis story about being dismissed, tracking symptoms, asking questions and making sure your experience is heard.

Life & Confidence

2 min read

I Lost My Confidence and My Job - But I Didn’t Lose Myself

How living with Wilson's disease affected my career and confidence, and how small steps and building Track My Copper helped me find a new direction.

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My Diagnosis Journey

3 min read

Things I Thought Were “Just Me” and Would Pass - Before I Was Diagnosed

A personal account of slurred speech, drooling and tremors before a Wilson's disease diagnosis, and the symptoms I once thought would simply pass.

Living With Rare Disease

3 min read

I Was Surviving, But I Was Suffering in the Survival

An honest reflection on pain, exhaustion and feeling dismissed before a Wilson's disease diagnosis, and the hidden cost of trying to keep going.